And This is Why We Struggle

I recently filled out a long diabetes survey where I had to rank the potential benefits of a hybrid artificial pancreas system. One of the choices was a good night’s sleep. I think I rated that as Benefit #2 and I can’t remember what was #1. Probably accuracy of the CGM sensor.

Last night I had proof that a good night’s sleep is hugely important to me and proof that it is occasionally an elusive unicorn.

From the CGM history on my Tandem pump.

7/30/21     12:45am     Out of Range Alert

7/30/21     1:20am       Out of Range Alert

7/30/21     1:20am       Fixed Low Alert

7/30/21     1:20am       Fixed Low Alert

7/30/21     1:45am       Fixed Low Alert

7/30/21     3:40am      Fixed Low Alert

7/30/21     4:35am     Fixed Low Alert

7/30/21     4:40am     Fixed Low Alert

7/30/21      4:45am     Fixed Low Alert

I am not sure how many of those vibrating alerts I slept through and for sure the Out of Range alarms were the result of me sleeping on top of my pump. But I was woken up 7-8 times during the night. My husband probably 3-4 times. At some point I turned off my phone to stop the “Nerd Alert” 55-low alarms.

Last evening we flew from Baltimore, MD to Minneapolis. Several hours waiting at the airport followed by an unpleasant boarding experience and an uncomfortably hot flight. But as always with flying, if you have an equal number of take-offs and landings, it is a good day. But it was still a cr*ppy flying experience with Delta which is normally good for us.

In general Control IQ protects me from most lows and it is rare that I have an overnight like last night. I had several carb-loaded snacks on the plane (there was nothing else to eat) but all of those boluses should have disappeared several hours before I went to bed. At 7:30pm mid-flight I took my 5u nightly Lantus bolus with an insulin pen. (I use the untethered regimen with Control IQ to give my body some insulin that the Tandem pump can’t suspend. It works well. Usually….)  I remember in previous years reading articles indicating that insulin pumps might not deliver insulin correctly while taking off and landing on airplanes. Air pressure issues. Does that affect insulin pens? And my bolus was mid-flight, but probably at 35,000 feet. I have never worried or taken precautions about my pump. Should I have not trusted my pen-bolus?

Our flight landed at 8:30pm and we were home within 30 minutes. A little TV and straight to bed. Here is a photo of my 12-hour pump screen from 10:00pm last night until 10:00am today. The red areas show where my insulin was suspended. As you can see, there were several hours overnight where I was in the 50’s despite hours of getting very little insulin from the pump and eating at least 4 glucose tabs. I actually tested with my meter once to confirm that the CGM was correct and it was. I never soared high after all of these suspensions and that is unusual. So the Lantus must have been super-charged. I don’t think that any of the early-evening Novolog pump boluses could have still been active. I am never someone  who thinks that my body occasionally produces insulin. It doesn’t. So something was definitely awry last night.

The two hours from 8:00am to 10:00am reflect a typical breakfast bolus for 20 carbs (oatmeal, almond milk, and chia seeds) followed by a 3-mile walk. That insulin suspension is expected and common. It is the previous 10 hours that is crazy.

I had a bad night’s sleep and awoke today tired and achy. But when I got up, I was mostly fine and I had a good day with no fatigue. But gosh darn-it! It is horrible to be awakened over and over again by my diabetes devices. Or is it my diabetes devices communicating the craziness of my diabetes? Either way, I hope that future generations of D-tech, improved artificial pancreas algorithms, and faster insulin products can eliminate nights like last night.

I am thinking that I should move “a good night’s sleep” to the #1 position in my diabetes surveys.

David Bernstein: Zen and the Art of Insulin Maintenance

Laddie: Today’s blogpost was submitted by my Arizona D-friend David Bernstein. David was diagnosed with diabetes nine years ago. After four years of frustration and ineffective treatments, David learned that original Type 2 diagnosis was a mistake and he was correctly diagnosed as Type 1. In recent years David’s pump and CGM have provided him with better tools to manage his diabetes but like many of us more experienced Type 1’s, he has discovered that the math of diabetes is only a starting point for managing blood sugar.

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David: As a Type 1 diabetic, I’ve ridden the sometimes wild and seemingly unpredictable highs and lows of the glucose roller-coaster.

Those of us who depend on insulin do our utmost to match insulin to sugars.  This match-up, after all, is the essence of diabetes management.  Yet the process can be so frustrating!  How many times are we surprised by the results of our efforts?  How many times do we feel like fools?  How many times do we scold ourselves for missing the mark?

We have been taught to administer our insulin according to empirical information.  For example, if your food to insulin ratio is 10 to 1, and you’re about to ingest 40 carbs of food, you need four units of insulin to handle the load.  Similarly, if your “adjustment” ratio is 30 to 1, you need one unit of insulin for every thirty points to bring you down to your glucose goal.

Math is handy, for sure, in diabetes management. We need the guidelines to get a sense of how much to dose.  From the various mathematical paradigms we’ve learned, we do lots of calculating and then come up with a number that determines how much insulin we take.

The system usually works, and most often gets us close to our goals.  But how many times are we surprised to find that a given dose is just not getting the job done?  How many times have we had sugars that go sky-high or nose-dive after lots of careful calculations?

Most of us have come to learn, and accept, that not every effort at managing our diabetes will be successful.  There will be times when our sugars seem so out of sync that we simply cannot fathom why!   It’s truly daunting to learn that dosing the same insulin for the same meal may not create the same results from one day to the next.

It’s common knowledge that various factors beyond insulin and glucose affect our glucose levels.  These include exercise, stress, sleep, pain, and more.  If we have a headache or some other physical discomfort, our sugars can be unpredictable.  If we are extremely worried and anxious, our sugars can vary widely.

Given the difficulty to maintain perfect control over sugars, many of us end up annoyed and confused.  Why did my glucose readings soar to 350?  How come I was steady all day and tonight my sugars dipped into dangerous hypoglycemic territory?

Should we blame the fates?  Is this thing called “management” of diabetes a fantasy?  Will we ever understand the inconsistencies in glucose levels?  Will we ever figure out the “perfect” dose for a given meal?  Tough questions indeed.

I would offer a way to deal with the seemingly crazy process.  I call it “zen” management.  Back in the 60s, a very popular book was published called Zen and the Art of Motorcycle Maintenance.  Subtitled an “inquiry into values,” the book explored our feelings about life and human interaction.

Among the many sayings in the book that became popular, one stood out in my mind: “First get the feeling, then figure out why.”  Isn’t that one way to approach our diabetes?  Should we strive to be more intuitive and less number-based about our insulin control?

“Zen” management of diabetes places more emphasis on our feelings at a given moment in time.  When it is time to dose, what factors other than numbers of carbs and insulin units should we consider?  Are we tired?  Sick?  Happy?  Sad?  Hassled?  Serene?

Since it is common knowledge that many factors affect insulin and glucose, it is important to look beyond plain and simple math.  We need to look inward.  We need to get a second sense about our dosing before we dose.

Before I take insulin, I sometimes do the math and then sit back with a cup of coffee (less milk, of course, in order not to begin the carb load!), and think.

Okay, yesterday the meal I’m about to have was perfectly covered with four units of insulin.  But today, things are different.  My readings have been on the high side since I got up.  I had a lousy night’s sleep.  I feel like I’m getting a cold.  I “feel” like five units will do a better job this time.

Such “zen” thinking flies in the face of the experts who would have us dose units with precision according to the quantity and quality of carbs we take.  But science alone does not always provide the complete picture.

If you’re tired of missing on the high or low side after dosing, try a broader thinking approach. Take into consideration emotional factors in your life.  Consider not only “thinking like a pancreas”, but also thinking like an individual.

Hopefully you will have more success reaching your goals.

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This article was originally published in 2018 as a commentary in the Diabetes Management Open Access Journal.

Bio:  David has a Ph.D. degree in French literature and a history of teaching French at university and secondary levels. After a career in education, he went into business with his son. They created an educational video company that sold to schools throughout the U.S. After retirement, he took up bluegrass banjo, wood bowl turning, and fused glass artwork. He is a passionate reader, writer, and TV watcher. He has been diabetic for nine years. He strives to learn more about type 1 so he can share his learning with fellow diabetics.