Monday Miscellany

Laddie_Head SquareThis post is a mixture of important and not-very-important stuff.  If you’re like me and getting tired of ‘heavy” and “try to change the world” issues, you might want to just read the last section which deals with autumn colors and burned-out lightbulbs. November is coming soon and I need to re-energize myself when it comes to diabetes advocacy.  I will — because diabetes never takes a vacation.

Diabetes Related:

Big Blue Test LogoThe Big Blue Test begins today and continues until November 19.  This is a program of the Diabetes Hands Foundation where people are encouraged to exercise for at least 14-20 minutes and log the results at the Big Blue Test website. People with diabetes need to test their blood sugar before and after the exercise session. Those without diabetes just log their exercise session. Each logged test raises $1 to support diabetes programs in the US and the Dominican Republic (Learn about the 2014 grant recipients.)  The Big Blue Test is an easy and meaningful way to advocate for people with diabetes. Join me and start participating!  (BTW-If you use mySugr, you can participate in the Big Blue Test as one of the challenges. My monster is hyped and ready to go!)

FDA Blue CircleThe hashtag #DOCASKSFDA has been everywhere in the diabetes online community recently. On November 3, 1-4pm EST, the FDA will host a live webcast that will feature a panel of people with Type 1/Type 2 diabetes along with representatives from ADA, JDRF, and diaTribe.  Please fill out the short survey created by diaTribe to share your thoughts on important concerns for people with diabetes.  The survey deadline is tomorrow, Oct. 21, so don’t delay.  Your voice is important!  You can learn more about the virtual conference at diaTribe.

Medical Not Diabetes:

CupcakeMost of us try to live a healthy life. Yeah, we make some bad decisions but we also do a lot of things right.  I always think that it is funny how many of us share photos of post-doctor appointment cupcakes.  Why do we work hard to prepare for medical appointments and then revel in “forbidden” treats afterwards?  Are we just being healthy to impress our medical professionals?  Beats me, but I always feel the need to “reward” myself after a stressful appointment or lab test.

I missed the cupcake craze so my reward used to be chocolate-covered donuts. I always swoon over these tasty treats as I walk past the donut case at my local Holiday Stationstore, but I have learned to resist them. (I have tons of other things that I can’t resist, so I’m not being overly virtuous here.)

On Friday morning I had a lab test as a follow-up to my annual physical in September. Internet searches indicated that the rogue result in September could range from meaningless to cancer. I was worried. I stopped at Holiday on the way home from the test and purchased a Diet Coke instead of donuts. I have been working hard to reduce the presence of dark sodas in my life, so Diet Coke is on my try-to-avoid list.  (Can you believe that I am still friends with Scott Johnson!!!)  I have to admit that I don’t like Diet Coke all that much any more, but I still buy it because it has such happy and friendly memories for me.

I got a call from my doctor’s office in the afternoon and fortunately my test was completely normal.  The nurse who phoned indicated that they didn’t want me to worry about the results all weekend.  My doctor earns an A+ grade for understanding how long a weekend can be when you’re worrying about medical issues.

Life Stuff:

Lamp to Repair_SquareSo far I have not had a great experience with long-lasting power-saving lightbulbs.  My latest glitch was the rattling and sizzling demise of a $15 lightbulb.  I put in another bulb and it died in a day or two. Being the electrical whiz that I am, I determined that I needed to replace the burned out socket in the lamp.  A trip to the hardware store, a new socket, and a $20 LED bulb solved the problem. The new bulb is advertised to last 22.8 years and ultimately save me $231. I’ll be 84 years old when it bites the dust (unless it’s like the old one which only lasted a month).

Autumn Colors SquareMid-October is a colorful time in Minnesota.  This photo was taken late last week on an early morning dog walk.  Unfortunately strong winds and cold temperatures have resulted in a blanket of beautiful leaves in my yard. But one good thing: Raking counts as exercise for the Big Blue Test!

A Bliss Point for Diabetes?

Laddie_Head SquareWhen it comes to junk food, the “Bliss Point” is the “just right” amount of sugar, salt, and/or fat that optimizes our taste and cravings for that food.  If you have doubts about whether the manufacturers of junk food have invested tons of money in the science of addiction, read the 2013 New York Times Magazine article titled The Extraordinary Science of Addictive Junk Food.

In economics, the “Bliss Point” of consumption is that point where any further increase in consumption would make the consumer less satisfied rather than more satisfied.  Maybe owning ten cars makes me deliriously happy while adding an eleventh overburdens me with the worry of  driving and maintaining so many vehicles.

The notion of a bliss point assumes that there is a point of optimization for many of the decisions that we make on a daily basis. My bliss point on salt might differ from yours and you may like your food sweeter than I do. But studies by marketing researcher and psychophysicist Howard Moskowitz have shown that large populations can be sorted into preference groups and products marketed to them accordingly.

I think that it makes sense to think about a bliss point when it comes to diabetes care. On one hand we like to think that we have total power of choice when it comes to consumer products. Therefore it is a stretch to compare the purchase of potato chips to the daily minutiae of diabetes.  After all, none of us invited diabetes into our lives and we often feel that we lack choice in how we deal with this unwelcome intruder. However, I believe that each one of us with diabetes could probably describe an optimization point of self-care where our daily BG numbers, A1c results, and risks of complications are balanced by somewhat acceptable levels of diabetes intrusion into our lives.

Now I am not beginning to suggest that it is easy to hit the bullseye of this hypothetical bliss point.  Diabetes is hard and some days we are dealt a losing hand in controlling the huge numbers of factors that influence blood sugar.  (In the August 2014 issue of Diatribe, Adam Brown listed 22 things that affect blood glucose and admitted that it was an incomplete list.)  But in general I am happiest when my A1c, range of low/high BG readings, and number of chocolate-covered donuts are in a certain range.  It is a balance of working hard while accepting my daily transgressions along with the uncontrollable BG excursions that come with Type 1.  I know that I could probably get a better A1c, but I think that I have hit the point where a better A1c might not be worth the disruptions and sacrifices in my life that it would require.  So maybe I am living close to my diabetes bliss point.

Because the bliss point differs for each of us, I might feel satisfied with test results that are higher than yours because my goals are different that yours.  I might be thrilled to have an average BG of 175 over the last 60 days because six months ago my average was 235.  I might be appalled at an A1c of 6.0% because my last one was 5.5% while you might rejoice at a 6.5% because it is the best result that you have ever had. You might find it acceptable to eat low carb a lot of the time and I am unwilling to give up favorite foods and the social aspects of restaurant eating.  I think that we could all agree that we neither want an A1c of 10.0% nor do we want to spend 100% of our life thinking about diabetes.  Somewhere between those extremes is a spot where we have settled. Maybe it is a good spot or maybe we want to change it.

Bliss Point Graphic

My best days with diabetes are when it lives quietly in the background. I don’t ignore it and I certainly take my insulin and test my BG.  Every so often I have a magical morning playing golf when I don’t hear a peep from my Dexcom for several hours. It’s not that I choose not to look at the CGM, but I feel so incredibly good that I totally forget about diabetes. What is interesting to me is that a retrospective look at my Dex for those rare mornings indicates that my BG usually hovers around 110-125 and it definitely stays within my programmed 70-140 range.  My perfect golf mornings start making me think that my bliss point might be somewhere around 120 and make me question whether my current daily goals are too tight. Having had Type 1 for 38 years, I have no illusions that an increase or decrease of 0.5% in my A1c will make a difference in my health. So this is definite food for thought. (Of course I have never been able to figure out why some golf mornings are perfect, others leave me munching an entire tube of glucose tabs, and others require multiple boluses to keep my readings out of the stratosphere….)

One reason that I have been thinking about optimal diabetes targets is wondering how an artificial pancreas would influence my life.  Many trial results for the bionic pancreas have mentioned that average BG levels for trial participants seem to cluster around 130-140 which approximate A1c’s of 6.2-6.5%. Those numbers are a long ways from the normal BG of 83 (A1c of 4.6%) that Dr. Bernstein espouses. However for the vast number of people with Type 1 diabetes, those numbers would be a huge improvement with the added bonus that hypoglycemia and high/low swings are greatly reduced.

But there are others (myself included) for whom this would result in a worsening of average BG numbers and A1c’s.  This is where the idea of a bliss point comes into play.  What is it worth in worsening BG numbers to eliminate most of the mental and daily-task burden of diabetes? Also, would my health actually be better if most lows and Himalayan BG swings were eliminated despite having a somewhat higher A1c? Interesting questions for sure.

Since one definition of “bliss” is “supreme happiness”, I think it is accurate to say that the only true bliss point for diabetes will be The Cure.  I don’t expect to see that in my lifetime.  At 2.5 years away from Medicare, I don’t even expect to benefit from encapsulated beta cells or an artificial pancreas.  But I think you younger Type 1’s will and that is exciting.  My hope for my old lady years is that Medicare will begin covering CGMS for seniors and that I will remain in good enough health to be the decision-maker for everything related to my diabetes for a long, long time.

JDRF One Walk Manhattan 2014

This post is a little dated because I have been on the road and decided to wait until I got home to add the photos and publish my story.  Last Sunday I got the opportunity to walk across the Brooklyn Bridge while supporting JDRF.

My youngest son lives in New York City with his wife and almost one-year-old daughter.  In general I hate New York because I am a suburban girl at heart and get claustrophobic being around all the people and crammed-together buildings. But one night in early summer I saw a post by Alecia of Surface Fine mentioning the JDRF One Walk Manhattan 2014. Before I knew it, I had signed up and pledged to raise a certain amount of money and walk with Alecia’s Stem Cells team.

A little background here. I grew up on the East Coast and have been in and out of NYC most of my life.  But I have never really liked it.  I hate the crowds, I hate the filth, and most especially I hate the smells.  Somehow I managed to have a child who loves New York, moved there after college, and has never left.  Usually we see him when he comes to Minneapolis for family visits, holidays, and friends’ weddings. My husband occasionally has business in NYC and meets him for dinner.  Now that my son is a father, I have pledged to visit him and his family occasionally rather than always make them come to my part of the world.

More background. When my darling granddaughter was born last October, I flew out to NYC to do my best to be helpful. Previously I had “met” Alecia online through Twitter and then her blog. I had also purchased one of her 2013 Alecia’s Stem Cells T-shirts because it was such a great design. So with no fear I emailed her to see if she would like to meet for lunch or a drink. In typical Alecia-style, she replied quickly and suggested Saturday brunch.  We enjoyed our visit and found that we had a lot in common.  Although I am a generation older than Alecia, we have both had Type 1 for over 35 years and we use Animas pumps and Dexcom G4 CGM’s.  Since our first meeting a year ago, we have continued to keep up with each other in typical DOC-style with occasional Tweets, emails, and blog comments.

Alecia is an avid JDRF supporter and this was her 15th Walk. Alecia’s Stem Cells team raised over $37,500 this year. Rather than recreate the wheel, I’ll share Alecia’s summary of the fantastic 2014 walk:

We had Walkers this year from NY, NJ, PA, IL, and MN.  We had our largest Walk team ever. We had friends and family from the very first Alecia’s Stem Cells team in 2001 and first time walkers who’d never been across the Brooklyn Bridge.  We had a grandmother who’s T1D, a 40-something T1D (me), a 20-something T1D and a 8-year old T1D.  The team may carry my name, but we were walking for ALL of us. Alecia’s Stem Cells was announced as one of the top 5 fundraising teams for the JDRF NYC.  We ran out of yellow ASC team ONE to NONE shirts and even had some walkers in the grey shirts from our online fundraising sale last month. Simply put, it was AMAZING adventure this year. 

I am especially glad that I joined Alecia’s walk this year because on Sunday afternoon she announced that this was the last walk for Alecia’s Stem Cells.  She has decided to challenge herself by joining the JDRF’s endurance sports program and begin training for one of the 100-mile bike rides in 2015.

One thing that I know about Alecia is that whenever she tackles a project, she always gives 110% and doesn’t quit until she succeeds.  I look forward to seeing which ride she chooses and I promise to support her with a donation.  Although I was happy to cross the Brooklyn Bridge with Alecia, I can say with absolute certainty that I will neither accompany her on training rides around Manhattan nor join her for a 100-mile ride!

Here are a couple of photos:

With Alecia at JDRF One Walk Manhattan 2014

With Alecia at JDRF One Walk Manhattan 2014

JDRF One Walk Manhattan 2014 is a family affair

JDRF One Walk Manhattan 2014 is a family affair

The Road to a CGM

Sue B_Head SquareIf you have been reading my blogs, you will already know who I am. If you have not, here is what I have been doing for the past two years. In June of 2012 my husband Marc became eligible for Medicare. He is a type 1 diabetic with hypoglycemia and hyperglycemia unawareness. Prior to entering the Medicare system, his Continuous Glucose Monitor (CGM) was covered by his private insurance company. Once he went on Medicare, this was no longer true. He was denied coverage of a new CGM when his old one stopped functioning.

We decided to fight Medicare because we really believed that the guideline should be changed for this piece of equipment. There are four levels to Medicare’s appeals system. Levels 1 and 2 are basically rejection letters from the insurance company and an independent company hired by the insurance company to review the insurance company decision. Level 3 is a hearing with an Administrative Law Judge (ALJ). I blogged about the 9-month wait for his decision in a mid-March 2014 blogpost. Unfortunately, that decision was UNFAVORABLE.

We decided to go on to Level 4 which is a hearing with the Medicare Appeals Council (MAC). Sadly, after a 5 month wait, we got a decision on Saturday, September 20 and the MAC upheld the ALJ decision. Previously we had thought that we would go to the next Level which is an appeal to the Federal Court System. Fortunately this was unnecessary because three weeks ago, the Veteran’s Administration (VA) supplied Marc with a CGM and sensors. My blogpost titled He Finally Got One! give the details of that wonderful milestone.

The Road to Getting a CGMBecause of Marc’s new situation with the VA supplying the CGM and sensors, even had the MAC given us a favorable decision, we would not have been able to accept the CGM though Medicare. But that doesn’t mean that I’m done with my advocacy. I am now going in a different direction and am going to do whatever I can to encourage everyone I know (and don’t know) to please sign the letter urging their Senators to support the Senate bill S. 2689 introduced by Senators Susan Collins and Jeanne Sheehan and the new companion bill H.R. 5644 introduced to Congress by Representatives Tom Reed, Diana DeGette and Ed Whitfield urging support from their colleagues in the Congress. Both of these bills are called the Medicare CGM Access Act of 2014. At the same time, please sign the Petition put forth by the Juvenile Diabetes Research Fund (JDRF) that will go directly to Medicare. Currently there are over 57,000 signatures but we need many more.

Please check out Laddie’s recent blogpost which gives links to easily contact your Senators and Representative and to sign the petition.

Over the past two years that I’ve been advocating for the CGM, I have met many wonderful people. It is because of them (Janice, Mig, Debbie, Dan, Judy, just to name a few) that I have continued on despite being so frustrated at times that I literally felt as if I could not go on any further. I would be totally remiss if I didn’t thank Laddie and Sue for their support as well. Both of them have been my teachers since as I’ve often said “I am not the diabetic”, and I had a lot to learn. I will keep on advocating and doing whatever is necessary until we collectively reach the goal of getting Medicare to change their guideline. I knew this wasn’t going to be a sprint. I knew this was going to be a marathon. And I knew I was in it for the long run. And I will continue to keep on blogging and working to get the guideline changed until the day that I can finally say WE GOT IT DONE.

More News on Medicare and CGM’s

Laddie_Head SquareOn Friday I received a copy of an email from a Medtronic spokesperson announcing an important development in the battle to have continuous glucose monitors (CGM) covered by Medicare.  This is an excerpt from her email:

We have some great news to share on the Medicare CGM Access Act! Late yesterday, Representatives Tom Reed, Dianne DeGette and Ed Whitfield introduced companion legislation into the House of Representatives.

As you’ll likely remember, back in July Senators Susan Collins and Jeanne Shaheen introduced nearly identical legislation to ensure access to CGM technology for people on Medicare. We can’t thank you enough for all the wonderful social media activity you’ve created to drive the community to urge their Senators to co-sponsor the bill. However, as you likely know, in order for a bill to become a law, it must be passed in both the Senate and the House before going to the President to sign or veto. So, this “companion bill”, which is nearly identical in content with a new number (HR 5644), is a key step in the legislative process.

Of course, this means it’s time to rally the community again, urging people with diabetes along with their friends and family to encourage their local Representatives  (as well as their Senators) co-sponsor the legislation.

Once again, JDRF has provided great resources where people can read about the issue as well as identify and easily contact their own Representatives and Senators.

You can find these resources here. You can also feel free to share our blog post.

For those on Medicare and those of us soon to be there, this is hugely important.  My CGM has been life-changing and I believe that it keeps me safe and improves my blood glucose profile on a daily basis.  My co-blogger Sue from Pennsylvania has repeatedly shared the nightmare that she lives in because of the non-coverage of her husband’s CGM by Medicare.

What can you do?

    1. Contact your U.S. Representative to ask him/her to co-sponsor H.R. 5644 and advocate for seniors with diabetes who require a CGM.
    2. If you have not already done so, contact your Senators to co-sponsor S. 2689 and advocate for seniors with diabetes who require a CGM.
    3. Sign the JDRF petition: Tell Medicare to Cover Continuous Glucose Monitors for People with Diabetes.  As of 9/21/14 the petition has 56,618 signatures and we hope to reach 100,000 signatures.
    4. Forward my blog to your friends and family urging them to take action.
    5. If you are a blogger, please share this with your readers.  If you would like to copy my blogpost word for word, please do so!

The links provided by JDRF make it simple to contact your Senators and Representative.  By filling in your name and address, your appeal is automatically sent to the correct government officials.  You are able to personalize your message by adding a few sentences to explain why this is important to you.  I used to be worried about trying to be an advocate.  JDRF has streamlined the process and made it “easy-peasy.”  You can complete Steps 1-3 in about 5 minutes.

I thank you for reading this.  More importantly, I thank you for contacting your elected officials to help ensure that your fellow Americans on Medicare have access to continuous glucose monitors.

If there is anyway that I can help you, please contact me.

HE FINALLY GOT ONE!

Sue B_Head SquareI have been advocating for over two years for Medicare to cover a Continuous Glucose Monitor (CGM) for my husband Marc. Synopsis – he had been covered for the CGM when he had private insurance through his employer, but when he turned 65 and became Medicare eligible, and needed a replacement CGM, it was denied. Medicare considers the CGM precautionary and therefore, in their opinion, not necessary. Of course, those who desperately need one disagree with this. The first denial came in August of 2012 and shortly thereafter, we started the long and exhausting appeals process. When we got to Level 3, a hearing by an Administrative Law Judge (ALJ), it took almost nine months after our June 26, 2013 hearing for the Judge to render an UNFAVORABLE decision. We decided to go on to Level 4 which is a hearing with the Medicare Appeals Council (MAC). They have the power to overturn the Judge’s decision. This Appeal was submitted to them in April of 2014. We are now in the 5th month of waiting for the Council to make a decision. The Appeals process is almost like watching a tortoise cross the road. It’s very, very slow.

In the meantime, Marc, after 45 years, decided to apply for VA benefits. He had served in the United States Air Force for four years but had never thought of getting any benefits through the VA. From the time he submitted his first application to when they processed him in took almost two years (nothing we do happens quickly). Finally, in May of this year, he became a part of the VA. He had to go through all types of exams, one of which was with the VA endocrinologist. In checking his A1c and hearing about his problem with hypoglycemia unawareness, she definitely thought that he needed a CGM and prescribed one for him. However, as with Medicare, we were told that the wait to get one was 1 – 2 years. For some reason, and I can only guess it was because he had so many instances of blacking out, she went to bat for him and I can finally say, HE HAS A CGM! Two weeks after speaking to her, he received an email from Dexcom that his CGM was on its way. Four days later it came.

To say that we are thrilled is putting it mildly. Our two years without a CGM are finally over. For myself, I can now be at peace during the day when Marc at work knowing that if his sugar starts to drop rapidly, he’ll get those warning beeps. And I welcome those beeps at night (which used to drive me crazy) because now I can sleep better (in between the beeping) knowing that we’ll have time to correct the situation before I have to go running for the Glucagon.

Dex Box Hooray

When I became an advocate for his CGM, I made a commitment to continue to fight for Medicare to make a change in their guideline even if Marc did eventually get a CGM, whether through Medicare or some other source. I intend to keep that commitment and will continue to work towards that goal. To that end, we are letting the Level 4 Appeal play out even though, if we are fortunate enough to get a FAVORABLE decision, we can no longer get a CGM through Medicare. It is our hope that if anyone who is thinking of going through the process will see that it is possible (I hope) to get a good decision and soldier on. No one should have to go through what we’ve gone through in the past two years to get a piece of equipment that is so life-saving.

If you are a Veteran and have not joined the VA, you might want to consider applying for benefits whether you are a diabetic or not. In the past four months, not only have they covered Marc’s CGM and sensors, but also Symlin, which is a synthetic aid in lowering blood sugar and is quite costly, his cholesterol medication, syringes, etc. In a future blog, I will give you a few hints about joining that might make it easier to navigate the VA, one of which is to contact your local County Veterans Service Officers. They are most helpful.

Blogrolls….

Laddie_Head SquareLast week I spent two hours updating my Blogroll.  The process began with a print-out of my current blogroll which I compared to my bookmarks for diabetes blogs in Safari. I found about 25 bookmarks which needed to be added to the list. One by one I typed in the name of each new blog and embedded the link to the website.

I had known for months that I needed to work on my blogroll, but the chore stayed at the bottom of my To-Do list.  What inspired me to finally tackle the project was the Wednesday, Sept. 3 DSMA TweetChat. The subject was whether the Diabetes Online Community (DOC) should have a governing body along with standards of conduct and lots of rules. No one seemed to think that was a good idea and the discussion moved to the topic of helping newcomers to the DOC find a foothold in the maze of diabetes social media.  Blogrolls were mentioned.

Blogrolls show up in many different forms.  Some like mine are long lists by category (Type 1, Type 2, Parent) with no description or rating of the blogs.  Others are shorter lists with titles such as “My Favorite Blogs” or “DOC Friends”.  One of my favorite blogrolls is by Scott at Rolling in the D because he has personalized his list with brief and occasionally witty descriptions of each blog/blogger. A nice feature on Blogger sites is a “live” blogroll that automatically updates with recently published posts.  Many DOC writers have chosen to not have blogrolls at all.

Blogroll_!What is the purpose of a blogroll?  When I began reading diabetes blogs many years ago, blogrolls were a magical pathway to “meeting” other people with diabetes.  Without Twitter and Facebook, there was really no other way to learn about other websites.  The first blog I read was either Scott’s or Kerri’s and then it was a dot-to-dot adventure finding other people sharing their stories.  My guess is that newcomers to the Diabetes Online Community (DOC) still use blogrolls in this fashion while most blogrolls are largely ignored.  My blogroll had about 200 views in the last year.  I hope that some viewers used my list to find other blogs.  Unfortunately I suspect that most of the views were just by other bloggers seeing if they were on the list!

The main reason that blogrolls are impossible to keep current is because there are now hundreds of diabetes blogs and new ones appearing all of the time.  If you check out most blogrolls, you will find a dated list that highlights many established D-blogs while including few new blogs and being littered with many blogs that have been abandoned for years.

As an experiment, I checked out the blogrolls of the first twenty blogs listed in my Safari bookmarks.  I chose 3 favorite blogs in addition to my own to see if they were listed in any blogrolls. These 3 blogs are by prolific Type 1 writers who like me have been around for about 1-1/2 to 2-1/2 years. Of the twenty blogs I checked out, 5 did not have blogrolls.  My blog was listed on 5 out of the remaining 15 blogrolls.  Another fantastic newish blog was listed on only 3 blogrolls.  One was seen on 6 out of 15 and the last one had more presence being on 9 out of 15 blogrolls. These stats are not meant to criticize anyone; rather they emphasize how flawed most blogrolls are.  Even if you are able to keep adding all of the new blogs, when do you take an inactive blog off the list?  The ultimate criteria is probably when the link doesn’t work anymore.  But how old is too old?

When blogrolls were mentioned in the September 3 DSMA TweetChat, Scott Johnson immediately tossed out the question of the day. Typical of DSMA, the discussion quickly went off-topic and morphed into shrimp rolls and carb counts.

Blogroll Tweet All

How do I feel about this?  On one hand, it is frustrating to be left off lists by people whom I know read my blog regularly.  At the same time, I know that it is meaningless because I don’t think blogrolls are used for much of anything and most of us rarely look at them.  So after this post I think I will go back to totally ignoring them.

Back to the September 3 DSMA TweetChat.  Although I don’t believe that the DOC needs a governing board or rules, I wonder if something like a DBlog Central website would be useful.  This site could maintain a complete and updated blogroll with descriptions and tags to help users navigate the DOC.  A central website could also be a hub for sharing information with all diabetes bloggers on things like starting a blog, finding diabetes graphics, Twitter names, current campaigns of the DOC such as Spare a Rose, and a calendar of events.

I can’t envision how something like this could be created.  Maybe we should have a governing board for the DOC and “they” could set up the website….  Yeah, right!  I think that most of us would say that the magic of the DOC comes from its somewhat chaotic nature and no one wants to regulate its constant evolution. Why should we change something that isn’t broken?

In the meantime I plan to continue to have a blogroll.  If you’re not on it and would like to be, please contact me.