I visit my endocrinologist twice a year. I used to go quarterly, but many years ago we decided that there just wasn’t much to talk about every 3 months. Sometimes even the semiannual appointments seem overly routine. My endo respects that I have had Type 1 diabetes for almost as long as she has been alive and that I am essentially a self-managed patient. At the same time she has the ability to pull me out of the tangles of diabetes minutiae and help me focus on the big picture of my overall health. And of course she is the portal to lab work, diabetes technology, supplies, and medications.
If you asked me how my diabetes has been for the last few months, I would answer frustrating. Too many lows, too many highs, too much of this, too little of that. I remember the bad stuff. The overnight lows in the 30’s when I must have acknowledged Dexcom alerts and gone back to sleep. The weekend of intractable highs from sampling a few gorging on Hershey’s chocolates. The party with too much wine and too little willpower. The days of “doing it right” and baffling wacky blood sugars. Insulin acting like water one day and nuclear fuel the next. Nothing unique to anyone with Type 1 diabetes. Probably no better or worse than other months in recent history.
I had my endo appointment on Monday. I arrived on time with Dexcom and Diasend reports in hand. We spent the first part of the appointment discussing a recent physical with my internist. Some of my numbers have been creeping out of the normal range into that zone that is within target if you don’t have diabetes, but not okay if you do. This is a discussion for a later blogpost, but I agreed to start taking a statin. She could see my distress at these recent changes and emphasized that the differences from last year were not hugely significant. She also discussed that current standards indicate that all patients with diabetes should be on statins unless there is a reason not to be. But ultimately it was my choice.
As she pulled out the Dexcom tracings, I said that I knew they looked good, but they weren’t. This was bad. That was bad. I starting babbling about basals, highs, lows, chocolate.
“STOP” she said.
Stop being so hard on yourself. Stop micromanaging. Stop obsessing over insignificant changes in health indices. Stop driving yourself crazy. Be confident that you are doing a good job. Relax. Take two aspirin with a glass of wine and call me in the morning. Oops, not the last one.
Very kindly she told me that she doesn’t know how people with perfectionist tendencies and diabetes do it. The frustrations, the illusiveness of perfection, the inconsistency, the unpredictability. She shared that her father is a “rocket science” engineer who does not have diabetes but would never being able to reconcile the “do it the same, get different results” illogic of Type 1 diabetes. I am not sure what she said next, but what I heard was “You are doing fine. Continue to respect your diabetes. Be kind to yourself. Keep up the good work.”
Then she walked me to the lab for my blood work. I went home. Definitely better off than when I came.
Love and Hugs. It’s just every day for us long timers. I need the reminder on occasion too, which is why I am so grateful that my endo’s nurse practitioner is similarly empathetic. Hang in there!
I wish all doctors could be like this, and that pwds, if possible, should continue to search until they find the right provider. “Respect” is the perfect attitude to have.
Sounds like you’re a good match!
What a great endo, she sounds like! Glad you have someone on your team who shares a mutual respect and gives you credit where it’s due. Hold on to her! 🙂
What a gem of an endo! It’s hard to give ourselves credit and even harder when we hear the criticisms of our health car provider. Good for her for helping you see the positives!!
Marvelous blog about a great experience. I’m so glad that you have her. The words that REALLY resonated with me were that the insulin acted like water one day and nuclear fuel the next. SO true, and so frustrating. An endo I once corresponded with said that with diabetes, every day is metabolically different. I try to keep that in mind when I start to get frustrated. Another wise person, a dietitian said that non-diabetics don’t know how much insulin their pancreata are secreting, so why should WE obsess on how much insulin we’re taking? Just take enough to do the job, even though that can be tough to figure out. So we DO have supportive people out there — we just have to remember them, and not let anyone else, including ourselves destroy that support.
I want to hug your endo!!! 🙂
Hold onto that endo! So very true that it often takes someone else to help realise the positives.